medical mystery

dianne just posted a post about this…the thread is called “excellent article….” it talks about “colic” and reflux and mspi.

“colic” is an excuse. in the article dianne posted, it talks about how there is no such thing as “Colic”. dr sears also says “colic” is an excuse they give you when they dont want to look deeper into the cause of the babies discomfort.

15mg is not the marci-kids recommended dose. i would try that. many of the babies on here did not get relief until they were on the marci kids dose.

second, i would not stop breastfeeding. breastmilk is so much better than formula. my son is MSPI, but i recently discovered he is also intolerant to wheat/gluten. maybe you can try cutting that out of your diet. i know eggs bother a lot of babies too.

good luck to you. i just want to add that many of the doctors we have come across have been wrong about my son. we were told he did not have reflux, that he did not have mspi, that he was just colicky….and my ped had never even heard of neocate. please stick to your guns..do your research and be persistant. i wouldnt rule out reflux or mspi/mfpi.

It sounds to me like whether she has MSPI or not, she still has reflux that is causing her pain. Will your doctor let you try a higher dose of PPI rather than stop it altogether? Also, I don’t see why you would need to give up breastfeeding if you don’t want too. It might be worth trying the elimination diet like Christine said before you resort to Neocate. Good luck with everything!

We have also been told that Hailey has either no reflux or mild reflux at best. I know she has severe reflux. Testing can often be valuable, but even then it’s not perfect. Your doctor should not be telling you to stop BF and I don’t see how he can say that it’s not reflux based on the symptoms you described. Can you get a GI?

nataliachick7 wrote:

dianne just posted a post about this…the thread is called “excellent article….” it talks about “colic” and reflux and mspi.

Where is this article at?

Just curious…

What did everyone like so much about that article?

nataliachick7 wrote: [QUOTE=s&h’s mum]

Just curious…

What did everyone like so much about that article?

it tells us that too many doctors use the excuse “colic” as to why many babies are miserable and cry all the time. they dont bother to investigate causes such as allergies/intolerances or reflux. they send you home and tell you there is nothing that can be done, you just have to wait till your baby “grows out of it”.

its a bunch of bs. i know a few moms whose babies have severe reflux, but in the begininng of their journeys they were told that babies either didnt get reflux or that medication was just ludacris for an infant. because it went untreated for so long, these babies just had to suffer because of doctors using the term “colic” as an excuse.

it just isnt fair.

[/QUOTE]

This happened with my firstborn unfortunately. I brought him to the ped many times describing how I couldn’t lay hime flat and he cried during feeds, etc. I was told he had colic and he would grow out of it and I needed to wait it out or that he was a high needs baby, etc. Finally when he was 10 weeks old I got an on call doc who said “maybe he has reflux, give him maalox before his feedings” and that was as close to any reflux meds I ever got for him.

He (and I) suffered unnecessarily. He is a very poor eater now as a toddler. Textures gag him now. He only wants to eat smooth things like yogurt. Sorry, I am rambling now. I suppose I should post about that somewhere else. Now that I am learning more about reflux I am becoming more concerned about Kaden and his eating habits and if they will ever resolve.