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Naomi:
I wish I knew what to say to make things better for you. Believe me, I remember yelling at anyone I could yell at, including Abby. I felt so angry, guilty, upset and just p*#sed off at the whole world. I remember hoping and praying that Abby wouldn’t have to have reflux too and then she arrives and it was way worse than Kayla’s ever was. You are a great mom – don’t ever forget that. Do you have anyone that you can talk to that understands your situation? Pastor, friend, relative??? Has the Zegerid helped at all? If not, could it be how it is mixed or anything like that? I know you probably have all of that figured out but I am just trying to rack my brain on why it may not be working. 48mg is quite a bit so the dose is probably ok – maybe Prevacid would work better??? I’m sorry I have given you more questions than answers. I just wish I could snap my finger and make it all better for you and Ben.
Sending you hugs and prayers!!
Robin
Sometimes I wonder if parents who are doing the TED are even more stressed. I wish I had answers for you but I don’t. I too yelled at everyone at times including Colton. He turns two this month and I still have times when I wonder when it all ends. I have two older boys and they both had reflux but nothing like Colt’s. I will pray for you and your little one. Try to get away for even an hour and you will feel so much better. I say that and I don’t have anyone that can watch my son so hopefully you do.
Oh, Naomi…I really feel for you.
I remember those horrible days all too well. I went throught it twice, too and I can honestly say that caring for my reflux babies was the hardest thing I’ve had to do my entire life. I yelled at my older children when things were so bad with Myles and I hated myself for it. But honeslty I feel that I was doing the best I could do in the situation, and you certainly are too.Talking to someone who will truly listen and not just brush you off with stupid comments really does help. I went to talk to my pastor once (the only time I ever left Myles with dh). I just cried and cried about how horrible it was, about puke all over the house 24/7, about my screaming and miserable infant, about what felt like house arrest because I hadn’t been out of the house for months. My wonderful pastor just listened and he was so sympathetic. He didn’t have any magic answers, but he truly cared and that helped so much. He put Myles on the prayer list at church and it helped to know that other people were praying for my little guy.
On the medical end of it…..is he taking 16 mg of Zegerid 3 times per day, or 16 mgs divided into three doses? Was he ever on Prevacid?
I know you are committed to nursing….I always was too….but considering that things have been bad for so long would you consider a trial of Neocate? I know that would be a very hard thing to do….
I will keep you and Ben in my prayers.
Naomi, I am so sorry you are feeling this way. I often feel like I am the only one. Justice is happy most of the time and doesn’t spit up all the time, but he is still not sleeping well. My 2 yr old is going crazy the last few days. Yesterday he got into the medicine cabinet and was eating meds when I caught him and today he dumped a whole thing of salt all over the kitchen. As if my house wasn’t already a mess. Justice is right here beside me fussing because he wants the stupid mouse.
I feel lilke all I ever do anymore is yell. Noone can ever just be happy in this house. Oh, and as far as the friends go. Everytime I’m around other moms I feel so depressed. Why can’t I have a perfect baby? What did I do so wrong that I have had two babies with reflux. I feel like such a failure. I feel like there has to be something I am doing wrong with the whole sleep thing. If only I would do this or if only I would do that. I feel guilty that I get on here for support because my kids are playing on their own and not getting my attention and the house is not getting clean. I continue to remind myself though that everyone gets a break so why shouldn’t I. Someone always wants me. Sometimes that is great, but I would just love to have a moment to myself. I would love to be able to sleep in my bed without someone touching me. I’m not trying to steal your post, but just let you know that you are not alone. I don’t think there is anything, but that that I can say. You are not the only one questioning God as to why. I just wish for all of us moms on this forum that we lived near each other. It would be so nice to hang out with other moms going through the same thing. It would be nice to come to each others homes and play with the kids so you could get house work done. I know that doesn’t make you feel any better. Me either, but I wish it were possible. If it’s nice where you are maybe get outside. I say who cares if your baby cries. It would be good for you to get out. I hope that is possible. I can’t tell you what just running to the store does for me. of course, I didn’t do that in the begining because Justice would just cry and it made things worse. Now though he loves shopping. I don’t think the other shoppers love us, but I just don’t care. Justice is a screamer. He screams when happy, mad, and sad. It is so ear piercing.
Oh, I will add if my dh would just put the dinner dishes in the dishwasher like I have asked him to do I wouldn’t feel so overwhelmed in the mornings and could maybe get some stuff done and spend some time with the boys. I just look at it all and feel like I just can’t do it. Stupid huh?
Justice’smom2007-3-1 16:56:26
You all are the absolute best. After I wrote the post, I signed off because Ben woke up from his nap (too early of course), and I spent the rest of the evening horrified at what I had written, embarrassed, mortified, humiliated, etc. Thank you so much for not being horrified too. I know there are so many of you who have been through so much worse and to take the time to make me feel better.. well, it really means a lot and helps so much too. Even if there isn’t anyone around here who understands, it’s nice to know that somewhere there are women who truly do.
To answer the questions: He hasn’t had any testing done. His pediatrician has never really felt that to be necessary, and I have always prayed that he would grow out of it quickly enough that we wouldn’t have to. Maybe I should consider this though.
He gets 16 mg. of Zegerid 3 times a day. This is even more than the Marci Kids site suggests. Honestly, he doesn’t seem to be in nearly as much pain as before, he is just so much more vocal and obnoxious
about the times when he is. He is a squealer lately when he feels a burp coming. It’s the most ear piercing awful sound. But once he burps, he’s fine, so I don’t know if it’s a pain thing or if he is just uncomfortable from the pressure. He was on Prevacid at first – compounded, but not correctly, and I couldn’t find anyone to do it the right way. I can’t imagine trying to time around when he eats, but maybe a switch is necessary????As for the breastfeeding. It would absolutely break my heart to give it up. I just don’t think I could do it, not yet anyway. But I’ve definitely thought about it.
Anyway, thanks ladies. Really, thank you so much.
Oh, don’t be horrified at all! We’ve all been there.
Did you say once that you had OAL? Do you still think that may be a problem?
No one here will ever judge you…we are all wonderful mums but sometimes we just need to vent and have our “little nervous breakdowns” (as I call them
on the daily basis i have them). My hypothesis is that it resets everything back to normal and stops us from becoming INSANE. I had a $ for every little sh*tty thing I have done over the last few months well I woulodn’t be sitting here…I would be flying over to visit all you guys
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