AT my wits end!!!!!

Cris,

We went to Yale and about a year ago got a letter that they were no longer taking patients and that was after they had already seen us. Most of the doctors left. Not sure if that has changed, but Dr. Sandra Escalera that was there and I think she takes the same insurance that she did when she was at the hospital. She is now in North Haven and we LOVE her. We only go when there is an issue which hasn’t been for a long while, but she is tops in my book! She is no nonsense and really wants to see the babies feel better. She is a mom herself so she really gets it.

Let me know if you would like her contact information. If I were you I would try to get an appt on the calendar now no matter who it’s with so you don’t have to wait until you return to make the appt. There is a long waiting list sometimes.

I am sorry you are going through this. Glad you are returning to CT but will warn you it is darn cold here now!

Let me know if I can help with contact info, etc…with any CT information.

Ann Marie

I know how scary that it when your son refuses to eat and can’t afford not to. It is really hard not to totally panic. Is it possible that your son is teething? That can aggravate reflux and cause a baby to refuse to eat. My son was prescribed Periactin to help his appetite and it helped a lot. You might want to ask about it. It’s an antihistamine, but one of the side efects is increased appetite. Used on anorexia nervosa. Emmy2006-2-28 22:34:20

I always upped my son’s meds without my docs permission. I’m not telling you to do that, but just wanted to let you know that another mom had to do what she needed to do so that her son was comfortable, even if it meant not following the docs recommendations. At 5 months old, I was pretty much giving my son 10mg twice a day (he weighed about 17lbs)- I figured the higher dose was helping not hurting. You could see the diffrence in him right away. Also, my son had the Prevacid powder packets that you mixed up 15 mg twice a day, so I had that wiggle room to be able to add more if I think he needed it, since when you mix the powder you have to throw out the unused portion immediately because it becomes non-usable within an hour or so.

Lansoprazole (Prevacid): 1-1.5 mg/kg/d (you take your son’s weight in pounds and devide by 2.2 to get kilograms. So if your son is 15 lbs, that’s 6.8 kilograms which would give you a dose of 6.8 to 10.2 mg per day)

Here’s the link where I got the dosing from, it is from the Pediatric GI team from the University of Florida on page 16, maybe if you show that pediatrician that, she’ll be more willing to up the dose (depending on how much your son weighs)http://www.peds.ufl.edu/prp/prp_fellows/gastro/gerd-ee-hp.pdf

The above power point also mentions that you NEED to split the dose and give the meds TWICE a day because their little metabolisms are so high that the medicine is out of their system by the time they go to bed and are unprotected from the acid all night long. My son’s reflux was obiviously worse in the evening-so I discovered it on my own when he was just 1 month old, so I asked the ped if I could split the dose and it helped a TON!

lansima2006-3-1 10:53:49

PPI dosing chart: https://www.infantreflux.org/forum/forum_posts.asp?TID=2668&a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;PN=1&TPN=1

Publications on PPI dosing: https://www.infantreflux.org/forum/forum_posts.asp?TID=2669&a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;TPN=1

How to ASK for PPIs to be Compounded (condensed version): https://www.infantreflux.org/forum/forum_posts.asp?TID=4505

Hey, hope he is doing better, just wanted to add that my son, 3 mos old, only eats 2 oz before bed at 9 then wakes up at 8 and only eats 2 more..he’s always happy and never dehydrated. he eats about 10 oz a day, his dr says he’s fine as long as he’s gaining weight, makes me nuts, but I’ve finally realized that she may have a point.