Infantreflux.org | grateful for the small blessings

This topic has 5 replies, 1 voice, and was last updated 17 years, 8 months ago by Anonymous.

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February 13, 2007 at 10:38 pm #24838

Anonymous
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Ohhhhhhhh, reading your last sentence just made my stomach drop because I had those SAME feelings when Sarah was born. I remember it very clearly! Aren’t all babies supposed to be happy and healthy???

I am so glad to hear that Chloe has gained some weight since her last appointment. I hope Chloe continues to develop and become your precious miracle baby full of wonderful surprises!

Keep your positive spirit and know that you can come here to post anytime! I love this forum for that exact reason…unconditional support!

February 14, 2007 at 1:33 am #24839

Anonymous
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I’m so glad to hear that Chloe is growing and developing well and that things aren’t as bad as they could be. I wanted to suggest craniosacral therapy. I think it is something that could really benefit Chloe. My husband is a craniosacral therapist (although he hasn’t been trained completely with babies & children yet). You can get more information at http://Upledger.com and could find a therapist in your area if you’re interested. I think it could help, especially with her nerve issues and the injuries you spoke of. Craniosacral is also great for development.

I know how scared and frustrated you must be, but you sound so strong! I know how you feel too. After having two perfectly healthy babies we really got slammed with all of Bryce’s health issues. It really makes you realize how much we take our healthy kids for granted.

Good luck with everything. I hope things continue to improve for you and Chloe.

February 14, 2007 at 9:23 am #24847

Anonymous
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Hi there

I am bad about checking this site lately — sorry i must have missed your posts. Wanted to welcome you here (I am sure others have done so already). There is a wonderful support group — was started as a reflux support group but really is just a support for children with special needs, ranging from tube feeding dependance/autism spectrum/genetic/CP/immuno etc etc. I really hope that you can visit us there

http://www.parent-2-parent.com/forum

The people are wondeful — they are wonderful here too!

I will try to read up on your little one — but come iintroduce yourself on the other forum. Hopefully you will get some anwers/teh support you are looking for

February 14, 2007 at 9:31 am #24849

Anonymous
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So happy to hear about the weight gain!! Keep your thoughts positive and you and your little one will be in my prayers!!

Robin

February 14, 2007 at 10:05 am #24854

Anonymous
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I’m so happy to hear that she is developing normally despite her microcephaly and that her doctor expects that it will continue. That is such terrific news.

Great news about her weight gain too!

I’m sorry about her arm though. I don’t know much about this condition. Will she be getting OT to help her compensate?

I will keep Chloe in my prayers.

February 14, 2007 at 1:29 pm #24879

Anonymous
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yeah for the weight gain!!!! Every step forward is a wonderful step!!!
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