Infantreflux.org | Aidan’s Fundo Update

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November 1, 2006 at 1:16 am #16967

Anonymous
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I wasn’t really sure where to put this, but this folder made the most sense.

Well, I took Aidan for her surgery follow-ups today, and we got good news and bad news. The good news is that she’s healed fantastically. The bad news is that she still hasn’t gained weight. She is now completely off the growth chart. So, starting tomorrow, we will be feeding her 12 extra oz through her feeding tube a day. I hope my supply can keep up with this, and I’m sure it can if I get busy with the pump and fenugreek… if not, maybe my doctor and I can figure something out. I really want to breastfeed to a year. I’m lucky that I’ve been able to keep it up through all this reflux stuff. Alot of relfux moms end up giving it up. Is that selfish of me? Maybe it is, but I feel like she has done the best with BM. And I don’t want to give up just because it may be difficult on me. Does that make sense?

November 1, 2006 at 9:18 am #16976

Anonymous
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Hi Amanda,
I’m sorry to hear that she’s not gaining weight. I know how frustrating that can be. Good luck with the feeding tube feeds though. I think it’s really great that you have continued to breast feed and that you’re willing to pump for her too. Because of Bryce’s cleft palate, he was unable to nurse, so I’ve been pumping all his milk for almost 11 months now… So I know how hard it can be sometimes, but I agree that it is definitely worth it! Hopefully she’ll start gaining weight and you can discontinue the tube feeds soon. Has your doctor mentioned fortifying the tube feeds? That might help her gain even better. Our doc gave us a prescription for microlipids to add to Bryce’s milk and we also add powdered goat’s milk (or you could add powdered formula) to add calories.

Good luck with everything!

November 1, 2006 at 11:18 am #16981

Anonymous
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Amanda,

Sorry to hear she isn’t gaining weight. We’ve had low weight gain problems ourselves but that was when our ds was almost beyond bottles so I can’t be much help to you.

As for bf-ing, do whatever you feel you can or need to do. I know I gave up because it was too hard on me and that was long before we knew we had reflux issues. It’s more than just a simple answer like that (meaning there were lots of reasons why) but when weighing the pros and the cons we just felt it was better for the family as a whole for us to be happy and making that one change solved a lot of issues for us.

Now that being said, I am a big supporter of those who can bf and I definitely think there is some validity to the child doing better with the BM. You will find lots of support here to keep going and to get to your year milestone but at the same time, PLEASE don’t beat yourself up if you don’t make it.

One suggestion I might make though is if you ever do reach the point of quitting, contine pumping for a little bit to see how your dd does on formula. I know of some babies who simply do not tolerate formula like BM but it’s too late for the mother to go back.

November 1, 2006 at 1:47 pm #17000

Anonymous
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I pumped for all three of mine because none of them would nurse for various reasons. It was so hard, but well worth it. One thing I did to make it a little easier was to supplement just a little bit with formula. I gave them one bottle of formula each day (usually before bed) so that 1. it would give me a little more breast milk to freeze for later, and 2. it would allow them to adjust to forumla, or at least let me know they could tolerate formula, so that when I decided to quit pumping I’d know they would be able to handle the formula.

Oh, and I was conflicted almost everyday. Should I quit? Should I continue? It’s so hard. But, it’s so good for them. With each of them the time came when I knew that I just couldn’t do it anymore and I stopped pumping. So, just take it one day at a time and be thankful and proud of yourself for each day that you do breast feed, and pump milk for her. It’s not an easy task, and you are a terrific mommy for trying so hard.

I hope she starts to gain weight soon.

November 2, 2006 at 1:10 am #17050

Anonymous
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amanda—don’t despair yet—-our surgeon told us it was normal for a baby to lose weight after surgery. sylvia was still the exact same weight 7 weeks after her surgery as she had been the day of surgery. at that point the surgeon wanted to consider a feeding tube—-but he talked to our ped gi and they decided to give her one more month—-and she put on about 10 oz.

sylvia did continued to be failure to thrive until she was 2, and we had a feeding tube mentioned one other time, but it turned out she had another issue going on. she had obstructive sleep apnea. once we removed her tonsils and adenoids she made leaps and bounds in progress—–eating, sleeping, gaining weight.

November 2, 2006 at 8:46 am #17053

Anonymous
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Good luck. Hope she puts on some pounds soon. HUGS.
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