At my wit’s end…

Remind me, what formula? Did you try Beechnut rice? Oatmeal is better for us, and maybe your son needs a different formula…..

I am so sorry you are going through this!! Boy have I been there. I have read your other posts also, have you tried Alimentum or Nutramigen?? Alimentum was a life saver for us. Does he have any mucous in his stools?

Beechnut is the best cereal/oatmeal since it is easier on the tummy, however why are you thicking? My daughter could not handle cereal/oatmeal until 8 months old. She spit up ALOT so I tried thicking at 4 months also and it was a disaster. It was just easier to deal with all the spit up then it was to deal with her having an upset stomach.

Is there anyway you can see another ped until you get into the GI or have you faxed your current doc the info from marci-kids.com to see if they will listen to you??

Also alot of parents recordered their little ones episodes on a tape recorder and taken it to the ped office to show them. This is just an idea and a never promote anyone to do this but can you up his dosage on your own? Do you have enough? Its just a thought and something that I have tried personally but if you can tape record him at his current dosage and then tape record him with the dosage upped and still have enough meds and then show your doc, I wonder what they would say. It just seems like when we are losing our minds we will try just about anything to help our babies. These are just ideas, but I wanted to pass them along incase you wanted to try them. I know how hard it is and alot of parents including me agree that 4 months is a really challenging time.

Good luck, your doing great, call the doc everyday if you have to!!!

btrue2006-10-13 12:57:54

Please on’t blame yourself….you followed doctor’s orders. And, some babies do fine with rice.

If he’s the same three days later, it may have more to do with his meds than the rice. I still wouldn’t go back to rice, I’d do oatmeal….but I think I’d try to find another doctor to try and get him on a higher dose of Prevacid. That’s what finally turned things around for Myles. It was pure h*ll until he was on the marci-kids dose. I felt the same way you feel ….I truly understand and I really feel for you and your baby.

November 16th is an awful long wait. Too long for a baby to have to be in pain. Is there another ped you could see until then? Or a family doctor? Sometimes family doctors are more open because they deal with reflux more and they are more knowledgeable about ppi’s. Myles doctor is a family doctor. Whoever you see, I’d advice you to print and bring along as much of the http://www.marci-kids.com information as you can. That’s what swayed my doctor to give Myles the high dose he needed.

Good luck. I’m sorry it’s so hard. I hope brighter days are not too far off for you and your little guy.

I was all for going right to Neocate with Carter as it worked for Dylan, but the insurance company fight I think is easier if you do the nutramigen first. Then you truely have eliminated all other possibilities that might work. The nutramigen milk proteins are already broken down, so the baby’s body doesn’t have to do that work. Dylan and Carter were still sensitive to the small proteins and needed the neocate which has no proteins at all. The cost of the nutramigen is less than the neocate, but you might be able to get your insurance company to pay for them. They paid with Dylan for our neocate, but we have new insurance now that will not pay for Carter’s.

Hopefully the doctor will get back to you soon!!!

Ann Marie

I agree with everyone!! I would give up on the cereal/oatmeal for now just to give him a break. Like Ann Marie said some babies do need it but if there is no reason he needs it and he doesn’t spit up that much then it could be creating more problems. That was definetly my experience. It is so hard to tell whether he will do better on the alimentum/nutramigen or neocate. Personally if I was to do it again, I would start with the insurance company and if they cover Neocate, I would go for it. Since it does not have any milk proteins that is one less thing to irritate him!! Good luck with getting the Prevacid upped!!

I don’t have much help with the formula issue since we’re nursing, but for a month, our GI did have us try the Neocate. It didn’t help Aidan at all, but she’s not MSPI. We also tried the rice cereal, and we have ended up using the oatmeal because Aidan’s body handles it much better. (((Hugs))) I know exactly how you feel! It sucks watching your little one in pain, and not having people take you seriously about it. Our first GI completely blew me off after he hospitalized her. Once he cleared her for pyloric stenosis, then he just said “oh, she’s gaining weight. she’s not refluxing.” I can’t imagine where we’d be if we had listened to him! Mommy’s know best.

I agree with a previous poster. Maybe you should find a different primary care physician. Our’s is fantastic (he is a family doctor), and he’s been really supportive of this whole reflux issue.