Home › Forums › Infant Reflux Information › Procedures › biopsy results…
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October 12, 2006 at 2:53 pm #15513AnonymousInactive
NORMAL!
The GI nurse called today and said that Hailey’s biopsies came back normal. (Great news!)
but then she proceeded to say goodbye and hang up the phone on me.
So I asked her if the doctor had any plans to see us again, and she said, “Why do you think he needs to see her again?”
I told her “Because I have a child with a severe feeding aversion who I have to still feed at night to get her to eat, who can’t sleep or nap, who chokes on vomit in her sleep, who is still losing weight, and who refluxes all day and night long, who has Sandifer’s, and who doesn’t seem to be outgrowing it.” So she said, “okay, call the receptionist and book an appointment for 3-4 months from now.” I’m not sure if I laughed out loud or not, but that was basically the response that I was expecting.
Well, needless to say I have no plans to do that. Having a doctor who never speaks to us and who doesn’t consider Hailey’s situation to be at all significant is useless to me… especially when it takes almost 2 hours to get there.
So, we’re off on the GI hunt again. Maybe there’s still a GI doctor left in the city who we haven’t seen. Or maybe I should just cut our losses and try to manage things ourselves. I’m not sure which one is the best for Hailey.
October 12, 2006 at 3:09 pm #15517AnonymousInactiveLori:
As I said in another post – YOU DESERVE A BREAK!!! I can’t imagine how frustrated you must be feeling. I don’t have any advice but just want to offer support. Poor little Hailey – she doesn’t deserve this either. 3-4 months from now!!!! Are they totally insane? You shouldn’t have to fight for good healthcare for your children. I wish I had some ideas for you.
Robin
October 12, 2006 at 3:23 pm #15519AnonymousInactiveThanks Robin, but I’m actually not too upset about it. I decided that I was going to look for another doc, even if he told me to come back next week. He doesn’t take our situation seriously. I’m not terribly concerned about the reflux at this point, because I don’t think there’s anything more that really can be done for us. I think that we just need to wait it out and see if anything changes, or play around with her diet (or what there is of it). It’s really the feeding issues that are the bigger concern to me. She can go all day and just not want to eat or drink anything. It’s just bizzarre. I would have no problem not having a GI anymore, but I think that with all of her feeding problems, and that fact that her reflux is still so bad, we really should have someone just monitor every now and again, even if they can’t offer any new options.
Sorry, I didn’t mean to come off as complaining when I posted. Really, I’m quite happy with the news. At least everything from the scope came back clear, which is the best we could ask for.
s&h’s mum2006-10-12 15:24:18
October 12, 2006 at 4:44 pm #15535AnonymousInactiveGood news about her results. How’s she feeling today?
October 12, 2006 at 5:25 pm #15540AnonymousInactiveShe seems to be feeling a lot better, thanks. But she’s still not eating or drinking and is quite touchy.
October 12, 2006 at 9:03 pm #15547AnonymousInactiveThat’s good that she’s feeling better.
Is she “touchy” because she can’t pull her hair? She probably used to use that to relieve stress and now she can’t do that, so I imagine she’d be irritable until she forgets about it or learns a new (hopefully positive) way to deal with stress.
Poor sweetie.
October 12, 2006 at 9:08 pm #15548AnonymousInactiveChristine, I think part of it is that she can’t pull her hair. But I think the bigger part is that she’s just uncomfortable- every little thing is a crisis… every fall is a catastrophe, every bump causes sobbing- usually those kind of things don’t phase her (she’s pretty used to getting pushed around by Sarah). She’s just clingy. She has a few sores on her feet today, so don’t know if that’s it.
October 12, 2006 at 9:22 pm #15552AnonymousInactiveHopefully it will pass quickly. Hand/foot/mouth sucks. I wish they’d come up with a vaccine for that one.
October 12, 2006 at 10:07 pm #15554AnonymousInactiveLori,
Glad to hear her biopsies came back normal, but sorry to hear how unconcerned the doc is about all of the other issues. Hopefully you can find a doc that you are comfortable with.
How is Hailey doing on her weight?
October 13, 2006 at 9:10 am #15564AnonymousInactiveI am glad the biopsies came back normal! I cannot stand nurses like that………where is their compassion?
October 13, 2006 at 9:38 am #15570AnonymousInactiveGreat news about biopsies!!!
October 13, 2006 at 9:36 pm #15657AnonymousInactiveYes, it was such a relief that they came back normal. Though I’ve been a bit confused as to whether or not it means that she doesn’t have any allergies. Our doc told us that if she had milk allergies or intolerances then it would be evident in the biopsies after being on milk formula for 15 months. He said that since everything came back clear, we can stop worrying that she is intolerant or allergic to milk or soy- she has no symptoms other than constipation and uncontrolled reflux. What do you think? Is this true. It would be such a relief not to have to wonder about this anymore.
October 14, 2006 at 12:17 am #15675AnonymousInactiveI’ve heard mixed info in regards to the allergy issue. I was told that if there were no eos. cells, then its safe to say that there are no allergies. However, I’ve also heard that intolerances can still be present even if there are no eos. cells. I’m still confused on the issue and cant seem to find a straight answer.
October 15, 2006 at 1:58 am #15721AnonymousInactives&h’s mum wrote:
Well, needless to say I have no plans to do that. Having a doctor who never speaks to us and who doesn’t consider Hailey’s situation to be at all significant is useless to me… especially when it takes almost 2 hours to get there.
So, we’re off on the GI hunt again. Maybe there’s still a GI doctor left in the city who we haven’t seen. Or maybe I should just cut our losses and try to manage things ourselves. I’m not sure which one is the best for Hailey.
OMG that sounds exactly like the frist GI we saw! He was awful! We switched and we couldn’t be happier now.
October 15, 2006 at 8:37 am #15727AnonymousInactiveThanks Amanda! I don’t know if there are any others left in the city for us to see.
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