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This topic has 14 replies, 1 voice, and was last updated 18 years, 1 month ago by Anonymous.

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September 14, 2006 at 7:14 pm #13599

Anonymous
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we went to the GI today, and he basically told us to suck it up. He said to

let her cry at night, let her throw up, don’t elevate the bed, feed her

whatever solids I want, let her drink water/juice (even though she spits up

anything thin), don’t worry about her eating issues (she will only eat 2

ounces and then we have to wait 20 min to feed her the other 2 ounces),

its ok that she only eats 18-20 ounces a day, to thicken her formula even

more (right now its 2 tsps of cereal per ounce), and he thinks we should

stop giving her medication. Ugh. I waited 2 months to be told to suck it

up. I am so depressed – and my DH agrees with him. So I am so supposed

to keep her on the medicine, thicken her feeds more, and then call the GI

back in 2 weeks to tell him how she is doing. She is doing the same.

Sorry to complain so much ugh!!!

September 14, 2006 at 7:36 pm #13604

Anonymous
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omg!!!!!! what an idiot!!!!

she is on 4 mg prilosec? that might as well be no prilosec. find a new doc??

im so sorry…

September 14, 2006 at 8:37 pm #13609

Anonymous
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Four letter words are coming to my mind right now and I normally don’t use those types of words. That guy is an IDIOT – I would definitely try to get a different doctor. No baby deserves to be in pain. I feel for you and can’t imagine how difficult it must be. Moms always know best – I can’t believe that guy can even call himself a doctor. Hang in there and be tough for your little one

Robin

September 14, 2006 at 8:40 pm #13610

Anonymous
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How sad. And, how incredibley frustrating. I wish I had some words of wisdom, but I think the only thing you can do is find another doctor. I’m so sorry you are going through this.

I can’t imagine thickening any more than 2 tsp per ounce. That seems like an awful lot.

September 14, 2006 at 9:21 pm #13617

Anonymous
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I agree with the other replies! I can imagine how frustrated you are. There’s nothing worse than waiting so long only to be told that. Keep looking for a new doc. Don’t give up until someone will listen to you. Whereabouts are you? Maybe we can help you find someone better.

September 14, 2006 at 9:34 pm #13620

Anonymous
Inactive

Sorry you had to go through this. Please do not give up, find a new dr. We waited serveral months to see our first ped GI and he told me that “I needed medicine to deal with my son’s pain.” My dh was ok with the dr answers too. The next day I was on a mission to find a new dr.; my son had already been way through too much to continue like this. Because of this dr, my son took a downward turn & it has been many months & counting to get back on our feet!

Good luck

K&T’s Mom2006-9-14 21:49:29

September 14, 2006 at 10:13 pm #13623

Anonymous
Inactive

crying will make the reflux worse. i’d find a new doctor.

September 15, 2006 at 12:07 am #13632

Anonymous
Inactive

Find a new doctor ASAP! 4mgs of Prilosec? I thought that Taylor’s 6mgs a day was little! She is absolutely not doing well, if she is up all night crying! For the 2oz at a time, I really can’t say much about that since that’s what Taylor does…I’m in the same boat with that, but it is not because she is in pain. How much thicker can her bottles be? Come on now, not elevate the bed, that MD is a QUACK and needs to get his license retested!

September 15, 2006 at 9:09 am #13643

Anonymous
Inactive

That’s awful! It’s stupid to tell you not to even elevate the bed and like everyone else has said, 4 mg is hardly anything.

I did want to add that I know thickening even more sounds like a lot, but we actually thickened Kaelyn’s bottles with 1 tbsp per ounce. Even with that, she still spit up tons, but it did slow it down some. If we went any lower, the spitting increased exponentially. At 6 months old, she could only handle 3 oz at a feeding. Any more than that and the whole bottle came back up. However, a major difference between her and Molly is that she was a comfort feeder, so she wanted to eat all the time. We actually had to force her to wait 2 hours between bottles. If you’re already having trouble getting her to take the formula the way that it’s thickened now then I’d be reluctant to add any more.

September 15, 2006 at 11:50 am #13659

Anonymous
Inactive

She is actually on 18 mgs of Prilosec a day – but that is only because I

told the Ped that was what I was going to do. It hasn’t really helped –

probably because she now weighs 16.5 lbs. I mentioned the marci site to

the GI and he asked me where I found that wikpedia. Errrr. He also wrote

me a prescription for a dinner and a movie out. He was very flippant. He

also knew I was getting mad – so he said I don’t mean to make light of

things. I also mentioned to him I still swaddle her, because she wacks

herself in the head if she isn’t, and he said that if she wack herself once

then she would learn not to do it again.

My DH is determined to let her cry it out this weekend. So he wants to

put her in her crib with no swaddle. I have no idea how this will work –

she already wakes up soon as you put her down even with the swaddle,

and wakes up every two hrs for her binky. I am very worried.

September 15, 2006 at 12:09 pm #13662

Anonymous
Inactive

I really feel for you. You’re just not getting any support from anyone. I hope you can find a doctor who will take you and reflux more seriously.

ndrose2006-9-15 12:9:49

September 15, 2006 at 12:15 pm #13664

Anonymous
Inactive

yes, 18 mg still sounds low. crying it out will only make it worse. she is crying for a reason, something is bothering her, most likely reflux pain since she is on a very low dose. crying also aggrivates reflux.

good luck, push for mari-kids dosing. fax all the dosing info to your doc and demand that he read that over and then give you a call once he has.

September 15, 2006 at 1:08 pm #13667

Anonymous
Inactive

Crying it out with a reflux baby just makes it worse. Both of my girls would reflux even harder when they cried and Alexis use to cry until she actually threw up and then cried some more. Alexis was swaddled in a miracle blanket for a long time until she stopped swatting at her face during her sleep. Taylor is also swaddled during the night and she is just a little younger than Molly, she too gets really tired and starts to claw at her face then her binky falls out and she screams this went on and on so we just continue to swaddle her, no harm done. I truly hope you find some support soon! It took a while for DH to truly understand how bad things were, it took me to have a mental breakdown for him to finally get it! Hopefully your husband figures it out sooner than mine!

September 15, 2006 at 1:18 pm #13670

Anonymous
Inactive

Crying it out is an awful idea for an active refluxer. She’s crying for a reason. Also, if you stopped swaddling and tried crying it out at the same time, it’s changing two things at once which is just asking for trouble. A real nightmare!

I’m sorry that you’re not getting any support. Writing you a prescription for dinner and a night out is just plain ridiculous.

Sue, I’m so glad that you said that you still swaddle her. I was starting to worry that we’d been swaddling Alex for too long.

September 16, 2006 at 3:13 pm #13744

Anonymous
Inactive

i am so sorry that you are dealing with this doctr. get a new one. i know it’s not that easy but it’s worth it. good luck
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