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August 25, 2006 at 10:31 am #12274

Anonymous
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Emma is going in for her 2 month checkup today. This is with the doctor who initially said she had colic. The doctor who actually prescribed the reflux medication isn’t seeing anyone for physical now as she is due to have her baby in like 3 weeks or so.

Anyway, I have decided I want to stagger her shots, so I have to discuss that with him and also I have printed out information from the Marci-Kids site to bring to him.

What kind of experiences have you guys had with dealing with your peds as far as spreading shots out and discussing the Marci-Kids stuff? Any suggestions or hints? I am not really sure how to go about it without feeling like I sound like I know more than he does!

August 25, 2006 at 11:17 am #12280

Anonymous
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I actually have no advice because I’ve never run into a doc who has listened to me about marci-kids… and I’ve seen many docs.

Hopefully someone else has some better advice for you. Good luck at the appointment. Why do you want to stagger the shots?

August 25, 2006 at 11:36 am #12282

Anonymous
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I can’t address the Marci Kids info but I agree with staggering shots. I think

they give too many shots at once for any poor baby to handle – much less a

refluxer with a sensitive system! If you do decide to stagger, it’s best usually

to get them at least 4 weeks apart to allow time to recover in between. So if

you get DTaP at this visit, I’d hold off on any others for a month, since DTaP

is very strong and often causes a reaction (fever, etc). I know the shots are

crucial and I’m a big fan of immunizations for the most part, but I think it’s

crazy to give so many at once (for example, I didn’t know better and at 2

months Marisa had DTaP, Polio, PCV and Comvax all at once. Ugh.

August 25, 2006 at 11:51 am #12283

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I agree with the shots for sure. They have always bothered me with all my kids. I too totally understand and agree with the need for all the shots and know their importance – it’s just the bombarding their poor little bodies with so much to deal with at once – add in reflux UGH! It really worries me with Emma because of the reflux situation. She has been having enough troubles as it is without making it worse. This morning I gave her the Prevacid and she spit up right afterwards. I wasn’t sure how much of it came out, so I didn’t dose her again – one dose and I can tell it’s making her uncomfortable.

Anyway, the shot choice is 2-fold. The reflux and worsening it and my ability to deal with Emma afterwards. I purposely made the appointment for after work on a Friday. My husband (don’t get me started) is no help whatsoever. My mother lives here with us and is tons of help but she is 72 and can only take so much of walking a baby around for hours while she screams. Though, the woman has the patience of a saint -I would be absolutely insane if it hadn’t been for her helping me!

I work at home, Emma doesn’t go to daycare and really seldom goes anywhere, for obvious reasons, and that lessons my worry about staggering her shots out. I just think it will be the least painful thing for all of us and hopefully make her a bit more comfortable in the process. I just know I am going to get the frown from the doctor about it!

August 25, 2006 at 1:29 pm #12292

Anonymous
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I never had any problems asking to stagger my children’s shots. You’re the parent and it’s your right to make that choice. Some people don’t vaccinate at all. They may try to sway you, but it is your decision.

I hope and pray that the doctor will consider the marci-kids info and increase her Prevacid dose, or start her on Zegerid which is even better. She shouldn’t have to be in pain and the right dose will fix that. It sure turned things around for Myles.

I hear you about the dh who does nothing; mine has been a spectator parent since day 1. Thank goodness you have your mother to help you. I’ve done it alone with three children in 3 1/2 years, two with reflux and having to pump and feed all three because none would nurse. It was a nightmare, but once the reflux passes (and it will), things get so much better.

Good luck and please keep us posted.

August 26, 2006 at 8:36 pm #12388

Anonymous
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Just wanted to find out what your pedi. said about the Marci-Kids info. ? My dd is 4 months and is on 7.5mg 2x’s a day and I wanted her GI to increase her Prevacid too. I emailed and talked to Dr.Phillips at Marci-Kids and he recommended 10mg 3x’s a day. So I faxed the information and my emails from Dr. Phillips to the GI and she refuses to increase her meds. eventhough she is crying during feedings. She wants us to switch to Neocate instead. So then I took the info. to her Pedi. b/c she had an appt. on the 25th. I basically got the same response. They wanted us to give her oatmeal prior to her feedings so she doesn’t take in so much formula (now drinks 32oz. per day). Then if is this doesn’t help they want us to try the Neocate.

By the response I get when I give these dr.’s the marci-kids research, it’s like they did the research on Mars or something. This is published research for God sakes!! Why does no one at least try the increased dose to see if it helps since there are no dose related side effects. I sure wish I lived in Missouri. I was willing to take Abby there but I can’t keep going back every few months and I’m sure I won’t be able to find a doctor near me that would work with them. Sometimes the answers seem so easy if’d they’d just try.

August 26, 2006 at 9:24 pm #12393

Anonymous
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I guess I’m the only that has a doc who won’t give more than one shot at a time.

Andrea, that’s the exact same reaction that we’ve always gotten when we presented the info. I think the problem is that there’s research saying that infants need higher doses of PPIs, but there’s no research saying why Marci-kids recommends these doses, and there’s no clinical trials on these doses. Most meds don’t have clinical trials on infants, but docs seem to be more comfortable prescribing meds that have been around for ages and ages. I’ve found that since PPIs are relatively new on the market for infants, most doctors aren’t comfortable with such high doses. I think they look at it like a liability issue… but that doesn’t make it any better. Keep pushing. Hopefully you’ll find a doc who will listen.

August 27, 2006 at 8:06 am #12401

Anonymous
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We actually almost enrolled Abby in a clinical trial for infants under 1 yr. at Rainbow Babies & Children’s hospital where her GI is at. There are at least two going on there now, one for Nexium and one for Propolsid. But we wanted to try the Prevacid first before submitting her to rounds of bloodwork. These studies are also low doses, a lot lower doses then what parents have said their kids are taking.

The oatmeal we are giving her is helping. This morning I also changed the nipple on the bottle to a level 2 and this helped. I don’t know if she wasn’t getting it quick enough and this was making her mad. We will see how it goes.
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